A few days ago we received some terrible news in our family. After 5 months of testing, MRIs, misdiagnosing and extended stays in the hospital, we were told that my little niece, Heaven, was diagnosed with pnet cancer. A week later she turned 12 years old.
What is PNET cancer?
- Primitive Neuroectodermal Tumors of the Central Nervous System (CNS PNET) are identified as highly aggressive large tumors that are found in the brain and spine.
- The cancer usually presents in young children and teenagers.
- The majority of patients are younger children.
- Currently the best survival rate is 60% for patients treated with radiation.
- Radiation tends to be avoided in young children. This reduces their survival rate to 20% - 30%.
- CNS PNETs are a group of tumors that are extremely diverse in character;
- Genomic patterns vary by age and location of the tumor;
- A large scale collaborative study is now required to understand the underlying biology better.
Tomorrow, Heaven and my brother’s family will travel to St. Jude Children’s hospital in Tennessee so that she can begin radiation and then chemotherapy. The next 8 months of their lives will not be normal. Please keep Heaven and family in your prayers.
What if you were the one that got this news? How would your life change? Would you make a commitment to do something you’ve never done before? Maybe it would be that one thing you have always dreamed about?
One thing is for certain, life is not perfect and it goes by fast. Make today your day to spend just 5 minutes doing something you love. It all starts with 5 minutes a day.